Back in the day, I used to do aerobics. It was a very 80's thing to do, and I was an 80's girl. I remember being in the class with the uber fit little sprite of a girl leading the charge and saying, 3 more, 2 more, 1 more NOW 5 more! That's very much how I felt after I slogged through 6 weeks of hell - well, really about 3 weeks of treatment hell. Only to have my Doctor turn to me and say that the 2 weeks after radiation ended would be worse. And, that I would only see the light at the end of the tunnel in about 6 weeks. Oh, and some of the side effects MAY be permanent.
And, then, gotta love this guy. He looked me in the eye and said, you look kinda down. Really? Is that much of a surprise? But at least it was over and I could stop my mind from running around in circles wondering if I should have ever consented to this treatment. The decision to put my life on hold because my Doctors told me that I had a better chance of not having a reoccurrence if I did was far easier when the costs were thereotical. Before I knew what the side effects would really feel like. Even though they warned me, repeatedly and somewhat eagerly, about how unwell I would feel. Give us six months of your life, they said, and we will work to prevent a recurrence of a cancer that is not 'salvageable' if it comes back.
When the cost was low, it was easy to comply with what they asked of me. The trouble for me comes when people start telling me what I 'have' to do. I really, really hate being told what to do. Is that because I am the youngest? Just the way I was made? Who knows, but it's been something I've struggled with my whole life.
To make matters worse, I didn't fit nicely into their protocol, so they would tell me what I 'had' to take and when I did it would cause more problems than solve. They have a little path you take, your mouth erupts into a million sores making it feel like there are razor blades lining your throat every time you swallow. The pain of a sip of water would cause tears. So, they prescribe some hydromorphine for you. And, some anti-nauseau medication. And, give you samples of liquid sustenance - ensure, boost, resource. Sugar laden, high calorie stuff. Suggesting anything out of the protocol - holistic options for managing the mouth sores for example, was met with more resistance than I could counter.
The problem for me was that I couldn't get my protein shakes down, and the other stuff would make me throw up. And, convincing them of that was an uphill battle. Frankly, spending hours throwing up with a throat lined with razor blades feels as good as it sounds. And, of course, the narcotics would also make me throw up. It seemed endless until I found a balance of a lot of anti-nausea medication and a little narcotic to take the edge of the pain. And, through it all I counted the days until it was all done. Luckily for me, I had miscalculated when my end date was so finding out that it was three days earlier than I thought gave me the lift I needed to push to the end.
So after I rang that lovely bell and was done with my last radiation treatment, I really hoped to be able to beat the statistics and heal a bit faster than predicted. I went straight away to my friendly acupuncturist, a lovely fellow who was able to abate the razor blade pain and get the nausea under control in one treatment. But just like the outside of my neck was horribly burned, the inside of my throat and mouth was burned and started to 'peel'. Creating oodles of thick, smelly, disgusting, revolting mucus. That I would cough up all day and all night. One entire weekend I spent on the couch with a bucket, watching the entire Walking Dead series, and wondering how to get a medically induced coma.
But s l o w l y it started to get better. Far more slowly than I would like, and not better every day. But the razor blades are gone, yesterday was the first day that I went to bed and wasn't hungry, and my mouth and throat are just moderately sore. I still don't speak very clearly, and it hurts to speak which I find inordinately frustrating. I'm still coughing and spitting up phlegm and blood from my poor healing throat and have started antibiotics in case the swelling is related to an infection, but am moving steadily towards a healed mouth and throat. And, will wait and hope that the most limiting side effects don't stick around forever.
It'll be interesting to see how I feel in a month or two. Right now, if I could be teleported back in time to April and asked if I wanted to go ahead with this treatment, I would say "HELL NO! Absolutely not. Not a chance". Hopefully this will all have been worth it, and my Doctor is right. By his way of thinking, the law of averages means that some good luck should be coming my way soon enough.
And, I do have more blessings, more kind and generous friends who have supported me with their words and actions, than I could have ever hoped to have.
Website of Lovely Acupuncturist - http://www.brucecawdron.com/